22nd January 2014
The Charity DEBRA was first formed in 1978 where little or nothing was known about the condition EB (Epidermolysis Bullosa).
The best was to describe EB is in between our layers of skin we have a protein that holds it together, children and adults born with EB are missing this vital protein so they have skin as fragile as a butterflies wing hence why they are called the Butterfly Children. In its mildest form severe painful blistering for the rest of their lives and I use the word mild loosely, in it's worst form it is fatal in days, weeks or months of a child's life. Please visit www.debra.org.uk for more information about the condition, case studies and how we spend our funds on making life easier for all families living with EB. Please feel free to phone me anytime on 07786-575512 if you feel your company would like to be involved with our cause. Regards Tony Eckersall Tony.Eckersall@debra.org.uk